Kelly Stafford's recovery from brain tumor: 'My biggest fear is not being here'

Stafford family grows stronger through medical scare (5:56)

Matthew Stafford and his wife, Kelly, open up about Kelly's brain tumor diagnosis and how the family persevered through her surgery and recovery. (5:56)

Editor's note: Kelly Stafford, who is the wife of Detroit Lions quarterback Matthew Stafford, had a tumor removed from her brain in April. Below is her first-person account of the experience.

The first moment I was really concerned was last January. I was in Michigan, and had just gotten a massage. When I walked out, I just didn't feel right. I was lightheaded and it felt like the world was spinning around me. I texted Matthew: "I might need you to come pick me up." But then I waited a little bit in my car, and started feeling better, so I drove home myself.

A week later, it happened again. This time, I was holding our daughter, Hunter, who was just an infant. The room started spinning around me and I felt like I was going to fall down. I almost threw Hunter to Matthew, because I didn't want her to go down with me.

Matthew was obviously concerned. "We can't have this keep happening," he said. "We need to get you checked out." He figured I might be dealing with vertigo.

Looking back, there were other moments over the past year where I was feeling "off." Like when I would show my girls how to do a front roll or twirl in ballet class, then immediately felt dizzy, or like I couldn't balance. I mean, those were things I had done my entire life, and suddenly they were difficult. Maybe I'm just aging, I had figured at the time. My mom quickly shot that down. I wasn't even 30.

But you know how things go. Matthew and I have three girls under the age of 2. I had my hands full. As a mom, you're always on the run. You're chasing after your kids or worrying about your family. You tend to put yourself on the back burner. So I didn't feel the urgency to go to the doctor.

The day I almost dropped Hunter, we were heading to California for vacation. At first I resisted because we had so much to do, but Matthew and I went to the ER to get checked out. My blood work looked great. My vitals were fine. Doctors offered to do an MRI, but I said I didn't have time. So they gave me Antivert, which is a medicine for vertigo, and we left for vacation. The problem was, the medicine wasn't having any effect on me.

Matthew had looped in the Lions' team doctor, and he scheduled me to get an MRI, about two weeks later, when we were in California.

A few days after the MRI, we got the results. The medical term was an acoustic neuroma or vestibular schwannoma. There was a tumor sitting on some of my cranial nerves. I was told I needed to have surgery to remove it. And I was terrified.

Not at first. At first, we didn't have any idea of where this was going to go, and we just needed to figure out how to deal with it. But as the day went on, my fears started to show themselves. What if this thing gets taken out and something goes wrong? What if something happens before that? My biggest fear is not being here, and not being here to raise my girls.

When I went home to hug my girls after the diagnosis, I knew I needed to get through this. I tried not to go down the rabbit hole when it came to what was the worst. I wanted to focus on positivity.

I shared a lot of my story on social media. It was a discussion that I had with Matthew. Social media for us has been not such a great thing sometimes, considering my husband and his job as quarterback of the Detroit Lions. We've seen some ugly things online.

A lot of fans view these men as sports figures and that's it -- just a sports figure. But they're also humans that go through things that everyone goes through, and so do their families.

Not only did I want to let people know what I was going through, I wanted to say: It's OK to be scared, regardless of your situation.

When I posted my story on social media, I was feeling really vulnerable, and felt like I needed a bunch of people on my team at that point. I prefaced it in a way that I wanted prayers, more than anything. The more people who are praying for you, the more success you'll have in anything you're praying for.

I'll say this: Detroit and Michigan really showed up. The Lions were incredible. They told Matthew to take all of the time and space he needed. And then, there were the fans. The amount of letters that poured into the facility -- so many prayers, a lot of holy water -- it was remarkable. Matthew joked that our house looked like a bootleg flower shop.

This state can be tough on its athletes, especially one that has been here so long. We've been here for 11 years now, and I had never really taken to this state as much as I wanted to ... until now. Because the support that these people gave me -- you can tell how much they love him by the support they gave me. I was truly grateful for it all.

I had the surgery on April 17. They were going to open up my head and there was a 50 percent chance I would lose my hearing. There was a chance I'd lose facial function. It was all really scary.

Dr. Greg Thompson did the surgery, and I can't say enough good things about him. A few times, he stopped the surgery because my audio waves went dead. His patience is what saved my hearing. He made everyone stop and wait until the wave return.

Matthew told me, if it's good news after the surgery, I'll be standing on your right side. If it's bad news, I'll be on your left. I don't remember much after waking up, but I do know he was standing on my right side.

It wasn't easy after. I needed to relearn how to walk. The first day, the physical therapist walked into my hospital room and said, "Let's get you up." I'm always one to challenge myself; that's my personality. I remember looking at her and I was like, "Nope." I felt dizzy just sitting, there was no way I was getting up.

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A little update: I thought I could do it. They told me tapering off the steroids was going to be very difficult. The first picture was yesterday when I was on what I thought was my last day of steroids. I thought I could power through the pain and massive headaches that were challenging me throughout the day. I figured i could pull my strength from one of the strongest people I know, matthew. I told myself the pain would succumb to me, I wouldn't succumb to it. I was so wrong. The pain got so far ahead of me I couldn't keep anything down, including meds. I ended up in the ER very early this morning, back on steroids and pain medication. At first, I felt like I had failed, like I couldn't handle it.. but what I really failed at was listening to my own body. A lesson I feel like I am going to have to keep reminding myself of. Thank you again for everything. I just wanted to give a little update. They will keep me here overnight just to monitor in hopes of going home in the morning.

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I felt really defeated that day. She said she would come back tomorrow. I was dreading it, dreading it all morning, waiting for her to come back. I grew up playing so many sports, putting one foot in front of the other should be second nature for anybody. But for me at that point, it was really tough. I made it two doors down, only two doors down, and my dad -- who was with me at the time -- began realizing how hard it was for me. "Remember," he said. "We need to go back."

I wasn't able to see my girls for nearly two weeks. The doctors suggested it would be best for them to be out of the house, or wherever I was recovering. Loud noises were hard for me. I couldn't lift my girls at all. They always want to be with me, or crawl on top of me. Learning to walk again was a process and having little ones running at your feet was probably not the best idea.

When I finally got to see them, we met at a park. I didn't have to worry about them running up and jumping on me, I could just sit there and watch them play.

Matthew taught the girls how to whisper and tell a secret, so they could be quiet while I was recovering. We also taught them to always say "I love you" -- no matter what.

Matthew was incredible during the whole process. He was literally by my side at every step. I had exercises I needed to do -- some of them were seemingly simple, like shaking my head left and right -- and Matthew helped me through all of it. The first month or two, we would try to walk down the street and sit on a bench and do the exercises. When a car passed by, it felt like a whirl. Doctors told me the more uncomfortable I can be, the better it will be in the long term because that's when your brain starts learning. I would walk on the sidewalk, then I would try walking through the mall, just to experience all the people going by. I couldn't really tell what I was seeing out of the right side. One person would look like four. Even if I tried to look right, it was hard.

I progressed, slowly. Matthew reported to training camp in July. He was away from the team a lot during OTAs, and I knew that killed him. Finally I was like, you need to go. It's better for both of us. I kept working hard and slowly things were coming back to me, like my balance. By August, I even began picking up boxing again. It's a workout I picked up a year and a half ago. It was always really challenging, but now with my brain it's far more challenging, because of the hand movements that are so quick, that are so hard to comprehend. After those workouts, I'm drained -- mentally and physically. Boxing is my therapy outside of therapy.

The first three or four months, I definitely felt fatigued. By 4 p.m. on most days I was wiped out. That has been one of the hardest parts -- not having the same energy I usually have around the girls, and being able to be an active mom. It has gotten a lot better lately, but I still have some bad days.

I've only gone to one football game this year. They're exhausting for me -- I mean, I feel like Lions games are always exhausting for everybody, because every game they play, I feel like it always comes down to the last play -- but the noise and constant action would be tough for me. This football season, in general, feels different for us. We have a different outlook. Matthew is still going out there and doing everything he can for the team, but going through this, you realize that in the end, family is the only thing you have.

So we're just making sure we have our family and that we're kind to everybody. Those are the things we focus on.

If there's anything I want people to take away from my story, it's for mothers. If you ever feel the slightest bit off, you need to take the time to get it checked out. You don't have to put everything on your back. Sometimes, you need to take some time to make sure you are OK.

Dr. Thompson said the fact I listened to myself early on is what saved my hearing (and to be honest, I should have listened earlier). The longer I would have waited, the tumor would have grown, and my hearing would have been gone. That's what usually brings people in.

These days, I feel pretty good. Days are longer. Some days are hard -- some mornings I wake up a little foggy, and know I have to take the day a little slower. It's rarer for me to get dizzy. Background noise can be tough (but also good -- sometimes I don't hear what I don't want to hear).

I'll probably look into hearing aids for safety reasons soon. I do hope to go to football games again, but I don't want to injure the ear we worked so hard to save.

The doctors said it would take about a year for me to feel symptom-free and have the same energy I had before. Thursday, Oct. 17, marks six months. I'm really excited to hit that marker.